Organisations should use participation to build trust and reduce risks

People should be able to trust organisations to make ethical decisions about data

30%

30%

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of people in the UK trust the government to use personal data about them ethically

YouGov – ODI

Results from an online poll of 2007 British people conducted Oct. 23-24, 2019.

10%

10%

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of people in the UK trust online retailers such as Amazon to use personal data about them ethically

YouGov – ODI

Results from an online poll of 2007 British people conducted Oct. 23-24, 2019.

25%

25%

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of people in the UK trust medical research charities such as Cancer Research UK to use personal data about them ethically

YouGov – ODI

Results from an online poll of 2007 British people conducted Oct. 23-24, 2019.

People want organisations to reduce harms and use data for public benefit

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Citizens’ Juries on Health Data Sharing in a Pandemic

NIHR Applied Research Collaboration Greater Manchester

In collaboration with NHSX and the National Data Guardian for Health and Social Care, the NIHR Applied Research Collaboration Greater Manchester commissioned a set of three online citizens’ juries about health data sharing in a pandemic between March and May 2021.

The juries each spent eight days listening to evidence and deliberating on three national data sharing initiatives which were introduced to tackle the pandemic. The juries concluded that the government was right to use emergency powers to share patient data during the Covid pandemic but greater transparency is needed.

When location data is linked with other data about people and the world we live in, we can gain important insights and create new services that greatly improve how we live, work and travel. With these new opportunities, there are also emerging privacy and ethical considerations. To continue to benefit from location data, it is important that these considerations are addressed, so that location data is used in a way that mitigates concerns and retains public confidence. Understanding public perspectives is key to this, as recognised in the UK’s Geospatial Strategy.

In March 2021, the Geospatial Commission and UK Research and Innovation’s Sciencewise programme commissioned Traverse and the Ada Lovelace Institute to deliver a public dialogue on the ethics of location data use.

Organisations can build trust by engaging with communities…

Be transparent
about data

Listen to
people’s concerns

Change what
they do with data

This guidebook presents guidance, tools and activities to help organisations become trustworthy and trusted stewards of data. At the Open Data Institute (ODI), we understand data stewardship as the collection, maintenance and sharing of data. We outline 10 elements of trustworthy data stewardship which will help organisations assess their trustworthiness and the degree to which they are trusted, build trust and trustworthiness where necessary and demonstrate their trustworthiness to others.

Doing better with data can be good for business

Increase
satisfaction

Reduce
risks

Reduce cost of
administration