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This week we had the first of our workshop sessions to explore the potential ecosystem around, and stakeholder engagement in, Joseph Rowntree Foundation (JRF) plans to develop an Insight Infrastructure on poverty in the UK.
Below I’ve written up an initial synthesis of the session.
Over last three weeks at the end of July 2022 I was an observer of the NHS AI Lab Public Dialogue on data stewardship: a process involving around 50 members of the public meeting for 12 hours (across four sessions) to share their ‘thoughts, aspirations, hopes and concerns’ about how access to healthcare data for AI purposes should be managed. A report of the dialogue was published by the organisers (Open Data Institute, Imperial College Health Partners and Ipsos), and the NHS AI Lab (who co-funded the dialogue along with Sciencewise) intend to use the findings to inform the Terms of Reference for a research competition titled ‘Participatory Fund for Patient-Driven AI Ethics Research’.
This write-up contains my notes as an independent observer of the dialogue, and member of the project’s Stakeholder group.
We are working on a project with the Joseph Rowntree Foundation to help them understand the ecosystem around their work to develop an insight infrastructure for social and economic inequalities, and how to engage with it.
One of the things that’s been a bit challenging to pin down is how to think about what an “insight infrastructure” actually is or does. Is it just a fancy name for what’s essentially a data portal? Or the long term development of system-wide change? Is it intended to be a set of services that JRF will provide? Or a shared movement they’re building? I’ve been drawing on previous work to provide a couple of ways of thinking about what insight and insight infrastructures actually are.
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